Education Health and Care Plan – Forward Planning for your Fragile X or SEN Child

I had to attend a meeting about Sir’s Education, Health and Care Plan (EHCP or Statement of Educational Need as they used to be known) I won’t go into the precise details obviously, but I thought it might be useful for parents who want to know roughly what to expect from these.

It brings together all the components of your child’s needs onto one piece of paper so to speak, and should be reviewed annually.

Last time the focus was on Sir’s educational needs, this time we looked further forward. We discussed sixth form and college education, we discussed possible employment and if adult services would be needed. All this when he is only 14.. but these things take an awful long time and a lot of information has to be gathered in the meantime. There are waiting lists, things could change in the next five years within the *system* in some ways I certainly hope there are changes, but that’s a whole other post.

Sometimes you go to these meetings and you think “why are they asking me all this now” but the wheels in SEN education do not turn very quickly. By the same token, if you are offered something now then take it, even if you aren’t sure your child needs it, there are always long lists for everything and they don’t often offer twice.

It’s best to have a list of the things you particularly want to mention so that you don’t forget in the midst of discussing everything else. If you don’t agree with something say so! it’s your child and you have a right to express your concerns. If you don’t understand something then ask. You will also be sent a form to fill out with your views and they also ask your child about their likes/dislikes/hopes too.

You will receive a draft of the plan for you to look over and make any amendments before the final copy is made.

This post is based on my experience with my children’s EHCP, obviously every case is different, but hopefully someone will find it helpful.



Word of the Week 19/10/18 Sir #WotW

First off all a big hello and thank you to @RaisieBay who has taken over the reins of Word of the Week from Jocelyn @ReadingRes! I’m sure she will be a wonderful host 🙂 Many thanks to Jocelyn too and love the new look of your blog!

Anyway, back to my week which has centred around Sir. He’s had a dentist appointment, which he did really well at. There was Parents Evening – which to be fair was for both of them now they are at the same school – he is making really good progress and then I had his ECHP meeting (Education, Care and Health Plan) not normally the most joyous occasion but got some very positive feedback and also talked about his future, sixth form etc which is a bit scary given he’s only 14!!!

Hope everyone has a good weekend.



Simple Autumn Decoration

I don’t normally do craft posts so this is a bit on an experiment!

I found this idea on Pinterest and decided to have a go myself. Now, I’m going to tell you where I got some of the stuff from and how much it was but this post is in no way an advertisement or endorsement of those places, neither have they asked me to write this post it’s more to illustrate how cheap and easy it was to do.


You need:

a basket – I already had that.

pine cones – £3 for a bag of snow sprayed ones from Hobbycraft, they do various sorts.

string lights – £1.50 for 20 from ASDA, again they do various ones

Basically you arrange your lights and pine cones in your basket till you are happy with how it looks et voila! that’s it!



Word of the Week 12/10/2018 Friends #WotW

I’ve done well this week, Tuesday, Wednesday and Thursday were spent catching up with friends. Two I see on a regular basis and one I haven’t seen for ages 😀 of course coffee was involved! and now I think I have well and truly set the world right LOL!

Another friend and I are going to see Lea Salonga in concert next year! My mum and I are going with that friend to see Les Miserable too 😀 many things to look forward to!

Hope you have all had a good week!



Word of the Week 05/10/2018 Artificial Plants #WotW

During my Big Clean I have disposed of some artificial plants and flowers that have seen better days, one has been around longer I have and there was also a basket display that my Nan gave me when Madam was born. Though it meant a lot to me the flowers had seen better days and the oasis was turning to dust.

So I set about looking for replacements, it took a while because I knew what I wanted, I just couldn’t find it.

I have now got two bouquets of vintage roses in one vase, a silver/green grass bush in another, white roses for small display on my window sill, a small herb plant that was meant for the kitchen but the container I was going to put it in broke, and some pine cones combined with LED string lights in the basket.

They may not be real but they have really brightened the place up!

I did get a real plant too! that has gone out into one of my containers in the garden 😀

Achievements In September

So this month

Sir has:

been to computer club at lunchtime

done good writing and learning in English

worked independently in maths

behaved himself at his podiatry appointment

settled very well into his new class

Madam has

started high school

been doing her homework straight after school on the night she’s given it

has been to games club and construction club at lunchtime

settled in very well at high school

been complimented on her rising trot at horse riding lessons.


Word of the Week 28/09/18 Autumn #WotW

Autumn is officially here, the autumn equinox was last Sunday, there’s been a bright harvest moon all week and various coffee chains are putting “bonfire” spice and “pumpkin” spice on top of their lattes 😀

I love autumn, the lovely sunny days, the leaves changing colour, crisp mornings. It’s also when I start the Big Christmas Clean. So far I’ve replaced curtains, taken down the fire guard – at last! I’ve got a big notice board for the kitchen to put all the important school letters and appointments on, it covers a lot of the wall which believe me is a good thing..

It’s not long till our autumn break at Centerparcs, so I’ve started to prepare for that.

I read somewhere, someone said they thought we should make our new year resolutions in September as there seems to more of an impetus for change whilst there’s still sunshine, unlike in January when all we (well me anyway) want to do is hide inside and forget the cold weather! I could get behind that as an idea!

This is a photo I took of the lake at Sherwood Forest last year.